Alyssa Medical History
Alyssa is now 10 years old and is in the 4th grade.
In the beginning of May 05’ when Alyssa was 6 and in Kindergarten, she
was not feeling good. She had the stomach flu or what we thought was the stomach
flu. She had a headache, was vomiting and was real tired. She missed a week of
school. She felt better and went to school the following week but she was very
tired and weak. On Saturday of that week she woke up and vomited but did not do
it again until the end of the day. We thought she was getting a touch of the flu
back. We took her to the doctor on Monday and they said she had a virus. That
week she continued to vomit occasionally and was very tired and complained of a
headache on one side. Her right eye looked a little swollen and she was
squinting it by the end of the week. I contacted Dr. McMillan on Friday and she
told us to get a sinus x-ray and come in to the office. We went in and saw Dr.
Hornick. He listened carefully to the symptoms and told us to go to the hospital
and get a CT scan immediately! We went to Akron Children’s Hospital and had the
CT scan done and then were told the results! To our shock they said there was a
tumor on her brain!!!! It was in the 4th ventricle. She also had
hydrocephalus. She was admitted that night and was scheduled for brain surgery
to remove the tumor on Monday, 5/23/05. The tumor was blocking her spinal cord
fluid from flowing correctly and it was creating pressure in her head. It was
also pushing on the optic nerve thus causing double vision.
The 10 hour surgery went very well and all of the tumor was removed. We are
blessed that we had many family and friends wait with us while Alyssa was in
Alyssa came out of surgery with an external shunt to drain the excess fluid
from her brain. She did not open her eyes for about 3 days. They did manually
open them for neurological checks but her left eye was fixed to the right. She
had 6th nerve palsy. I remember thinking “Ok, I can live with a
crooked eye, at least I have my baby……” A biopsy was done to determine the type.
About a week later we received the results: “MEDULLOBLASTOMA”...A cancerous
After a couple of days, the doctors tried to clamp her external brain drain
but it was not tolerated. She was scheduled for another surgery on 6/01/05 to
put in a
Ventricular Shunt for hydrocephalus and an internal Mediport for future
chemotherapy use. That surgery was about 4 hours and it all went well.
While in the hospital her eyes started to get better. She could open them but
still had double vision and was squinting one eye or the other to compensate.
She received physical therapy to learn how to walk again & to strengthen her
She was put to sleep for the third time there to have her staples removed
from her head, a spinal tap & an MRI to make sure all was well with the shunt
and mediport. We were delighted & thankful that the spinal tap showed no
cancerous cells in the spinal cord!
She came home on 6/07/05!!!!!!
She went thru 6 wks. of radiation in the summer 05’ & started chemo. Chemo
will be finished in July 06'.
Alyssa never got her last chemo. When we went in for her last chemo, she had
some symptoms that needed checking into which were unstable walking and trouble
with handwriting...... The Oncologist ordered an MRI of the head and spine. The
spine was clear but they saw something on the head scan that they were not sure
of. We were sent down to the Cleveland Clinic for a PET scan & that was also
inconclusive. The only way to be sure if this was recurrent medulloblastoma or
radiation necrosis would be to do a biopsy. We were scheduled for another brain
surgery/biopsy on 7/26/06. Alyssa's surgery went well. The results of the biopsy
were that it was radiation necrosis and NOT recurrent medulloblastoma!!! Praise
God! Her Oncologist told us that she would not need to have her last chemo &
that she was finished with all treatments.
Alyssa is currently undergoing Hyperbaric Oxygen Therapy at the Lutheran
Wound Center (part of the Cleveland Clinic) for radiation damage to her brain.
She started 10/04/06 and went for 20 treatments. At that point, an MRI was
performed to see if it was working. Praise be to God! For He is good! The
measurement for radiation necrosis/injury was: 4.2 X 3 X 3.6 before we
started HBOT and the new measurement for it is 3.1 X 1.4 X 2.1!!! That is
a significant change! So, we will be continuing another 20 treatments! The
treatments are every day for about 2 ˝ hours. More improvement showed. Continued
with 20 more treatments.
Completed 59 treatments of HBO Therapy. She had a seizure and lost her vision
in the tank, the day before she completed 60 treatments. She went to Children's
for a few days. EGG given, results good! She was released after regaining her
MRI CLEAR (brain)
MRI CLEAR (brain and spine)
Jeanne Wallace supplement recommendations
MRI Clear (brain and spine - sedation)
MRI Clear (brain - sedation) start 6 months
MRI (brain and spine sedation) -
inconclusive may be change - rescan
MRI (brain sedation) clear - recheck
(official dx. Pituitary Dwarfism)
MRI (brain - sedation) ~ CLEAR!
Recheck Aug. 6, 2009
MRI (brain and spine -
mm hypointense lesion which shows no
Retest Dec. '09
MRI (brain - sedation) ALL CLEAR!